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Evaluación del impacto clínico del uso de medidas de resultados reportados por los pacientes con lupus eritematoso sistémico en España

Evaluación del impacto clínico del uso de medidas de resultados reportados por los pacientes con lupus eritematoso sistémico en España

Patient reported outcome measures (PROMs) can be useful tools that facilitate decision-making in routine clinical practice.

They can allow the structured and validated incorporation of the perspective of patients with systemic lupus erythematosus (SLE).

Lupus Impact Tracker (LIT) is a questionnaire that has been validated in Spanish patients with SLE, that evaluates quality of life and impact of lupus on daily life.

However, the clinical benefit of its use in routine clinical practice, with respect to disease control and patient-physician relationship, has not been evaluated.
The objective is to design a multicenter observational study in patients with SLE to estimate the clinical benefit and the impact of the incorporation of the LIT questionnaire in routine clinical practice in Spain.”


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