Psoriasis is a multifactorial condition where different factors, such as stress or visible lesions, can significantly impact patients’ health-related quality of life (HRQoL). While HRQoL involves the patient’s health status, the concept of well-being encompasses a more comprehensive and subjective view, integrating social, emotional and physical dimensions along with their respective components. This provides a more holistic perspective that also includes aspects of HRQoL. This study aims to determine the relative weight of each component of well-being in patients with psoriasis and their perceived importance from professionals’ and patients’ perspectives.
Methods:
Two questionnaires were developed: a 33-item version for patients and an 18-item version for healthcare professionals. Questionnaires employed the Best & Worst Scaling methodology. 20 components were randomly assigned in 76 scenarios, pairing each component with others 4 times to ensure a comprehensive evaluation across all combinations. Participants evaluated 9-10 scenarios randomly selected and identified their components as best or worst, along with other sociodemographic, clinical, and professional aspects.
Results:
Pain, stress, treatment satisfaction, itch, and injuries in functional locations were the most critical components for patients, while mood alterations, pain, injuries in functional locations, self-esteem, and stigmatisation/shame were for professionals. Overall, the physical dimension was more relevant for patients, while the emotional dimension was for professionals.
Conclusions:
This study highlights the differences between patients and professionals in their perception of the relative importance and relevance of the components contributing to the well-being of patients with psoriasis. Future research should focus on understanding the cumulative impact of psoriasis on patients’ well-being.