Health-related quality of life in patients living with Wilson disease in Spain: a cross-sectional observational study
Cross-sectional observational study conducted in patients diagnosed of Wilson disease. The results of the study show a high proportion of patients with impairment mainly in the emotional domain. Although many patients are satisfied with the treatment, they feel that they have to take too many tablets daily, which could affect adherence. The study indicates that […]
Defining a standard set of health outcomes for patients with relapsing-remitting multiple sclerosis
An expert consensus on the definition of a standardised set of health outcome variables for managing patients with relapsing-remitting multiple sclerosis. This set includes all relevant variables for both healthcare professionals and patients, the instruments needed to collect them, and the measurement frequency.
Cost-effectiveness analysis of abrocitinib compared with other systemic treatments for severe atopic dermatitis in Spain
Atopic dermatitis (AD) is a chronic, inflammatory skin disease characterized by itchy, painful, and dry skin. Despite the great number of available therapies, economic evaluations are needed to provide evidence on their cost-efficiency to assist the National Health System (NHS) in decision-making. The objective of this study is to evaluate the cost-effectiveness of abrocitinib (200mg) […]
Patient-Reported Outcome Measures in severe asthma: an expert consensus
An expert consensus on the most relevant Patient Reported Outcomes (PRO) and their measures (PROM) for patient with severe asthma monitoring in clinical practice in Spain. The results of this study offer an approach in the follow-up of severe asthma for the standardized integration of the patient’s perspective into clinical practice, thus contributing to optimize […]
Assessing the value of atopic dermatitis treatment using Multi-Criteria Decision Analysis (MCDA)
MCDA to create an optimal conceptual framework for evaluating novel treatments in moderate-to-severe AD by establishing the most relevant health outcomes (criteria) for decision-making from all stakeholders’ perspectives (patients, clinicians and payers).
Coste-utilidad de la telerrehabilitación cardíaca frente a la rehabilitación hospitalaria convencional tras síndrome coronario agudo en España
Cost-utility analysis based on data collected in a clinical trial conducted at the Hospital Arnau de Vilanova (Valencia). The trial compared cardiac telerehabilitation with conventional hospital rehabilitation. The analysis was conducted from the perspective of the National Health System and society.
Therapeutic management of allergic rhinitis: a survey of otolaryngology and allergology specialists
This short communication sets out in the context of the publication of the Next-generation ARIA guidelines and the need to improve the therapeutic control of AR patients in our settings. Therefore, this work describe how the management of AR by specialists (otolaryngologists and allergists) is according to new guidelines in the Spanish Public and Private […]
Epidemiological, clinical, patient-reported and economic burden of inflammatory bowel disease (ulcerative colitis and Crohn’s disease) in Spain: A systematic review
This study describes the epidemiological, clinical, patient-reported and economic burden of inflammatory bowel disease (IBD), including Crohn’s disease (CD) and ulcerative colitis (UC), in Spain.
Physicians’ Perception of Oral Nutritional Supplement Acceptance and Tolerability in Malnourished Outpatients: PerceptiONS Study
PerceptiONS study explore the perception of 548 physicians regarding the experience of 2516 patients of malnourished outpatients prescribed ONS. From them perspective, most patients adhered to the ONS prescribed. Smell and flavor were deemed the main factors conditioning ONS adherence. In addition, physicians perceived that ONS were well tolerated, mainly due to their organoleptic characteristics, […]
Standard Set of Health Outcomes for Patients with Relapsing Remitting Multiple Sclerosis
A systematic, standardized collection of health outcomes, relevant from the perspective of all stakeholders, during patient treatment and follow up is a crucial step towards effective and efficient patient centered care. To this end, a standard set targeted to relapsing remitting multiple sclerosis (RRMS) management that includes relevant health outcomes from the perspective of patients […]
